Voice of Family Carers

How the National Family Carer Network facilitates the voice of family carers of adults with learning disabilities.

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Please see notes below for explanation for the abbreviations.

Explanatory Notes

APPG – All Party Parliamentary Group - An all-party parliamentary group[1] (APPG) is a grouping in the UK parliament that is composed of politicians from all political parties

CQC – Care Quality Commission – The Care Quality Commission is the independent regulator of all health and social care services in England. They check whether hospitals and care services are meeting national standards. They are funded through a combination of registration fee income and Government grant-in-aid. HealthWatch England will be a statutory committee of the Care Quality Commission (CQC) with a Chair who will be a non-executive director of the CQC.

LDC – Learning Disability Coalition – The LDC was originally formed with a membership of 14 organisations to campaign for better social care funding. It is now being hosted by VODG (Voluntary Organisations Disability Group)

National Learning Disability Programme Board – The National Learning Disability Programme Board was set up in 2009 when the Government published Valuing People Now. This replaced the Learning Disability Taskforce established through Valuing People in 2001. It is made up of senior Government officials from many departments, people from key organisations in the field, family carer representatives (from the National Valuing Families Forum), self advocates (the two Chairs of the National Forum for People with Learning Difficulties)

NVFF – National Valuing Families Forum - The National Valuing Families Forum is hosted by Carers Trust. It developed through the Valuing People programme leads for families, who drew together representatives from family carers from nine regions across the country.

This group helps the National Learning Disability Programme Board know what is important for families. It also provides direct links between family members who sit on local Learning Disability Partnership Boards and the National Learning Disability Programme Board.

Standing Commission on Carers - The Standing Commission was set up to provide independent expert advice to Ministers and Government Departments. Since the National Carers Strategy – ‘Carers at the heart of 21st century families and communities’ - was published in 2008, the Commission's role is to advise on how the Carers Strategy is being put into action and to help shape further relevant policy development. Several members have a relative with learning disabilities and two are Advisers to the NFCN.